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How a fear of inadequacy affects my ability to respond to crises
As a parent, columnist Joe MacDonald must work to overcome a fear of inadequacy in caring for his sons who have hemophilia.
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Delayed diagnosis common in AHA, affecting 1 in 3 patients: Study
A delayed diagnosis is common for people with acquired hemophilia A (AHA), according to a new study that found that it took ...
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Clotting factor proteins may affect bone cell activity, study finds
Clotting proteins missing or are defective in hemophilia can directly affect the activity of cells responsible for bone ...
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One Drop’s impact on those with ultrarare bleeding disorders
This month, I attended One Drop, a “rare bleeding disorders consortium” hosted by Comprehensive Health Education Services (CHES) in Tampa, Florida. The event supported individuals and families with ...
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When I was ill, I learned that factor infusion waits for nobody
When my oldest son, Julian, was 5, our paths crossed in the medical world. My wife, Cazandra, was out of town, and my boy and I were holding down the fort at home. Julian had hemophilia with a ...